The Journey 2015

thoughtsfromthefrontlawn

th

Let start at the beginning, January 01, 2015.  Living with ALS (amyotrophic lateral sclerosis) it’s been an eye opening life challenging occurrence, my affirmation was to keep this illness slow and steady.  I believe my thoughts and positive outlook has afforded me to continue the path of a slow progression.  I’ve continued my acupuncture treatments, twice a week and massage therapy, once a week.  My diet, I believe has helped me as well.  Gluten-free, and no red meat.  I can say 100 percent anyone  dealing with any kind of illness what you put in your body makes all the difference.

Lets discuss this Gluten-free diet, at the beginning I said what no bread, oh I can’t do that!  But, the truth for me was it has made all the difference in every way possible.  There are now so many kinds of gluten-free products available and would bet you couldn’t tell…

View original post 956 more words

The Journey 2015

 

th

 

 

Let start at the beginning, January 01, 2015.  Living with ALS (amyotrophic lateral sclerosis) it’s been an eye opening life challenging occurrence, my affirmation was to keep this illness slow and steady.  I believe my thoughts and positive outlook has afforded me to continue the path of a slow progression.  I’ve continued my acupuncture treatments, twice a week and massage therapy, once a week.  My diet, I believe has helped me as well.  Gluten-free, and no red meat.  I can say 100 percent anyone  dealing with any kind of illness what you put in your body makes all the difference.

Lets discuss this Gluten-free diet, at the beginning I said what no bread, oh I can’t do that!  But, the truth for me was it has made all the difference in every way possible.  There are now so many kinds of gluten-free products available and would bet you couldn’t tell the difference.  I love pizza and thought, what will I do now.  But, guess what there’s gluten-free bread and I am still enjoying my pizza.  I also would say, gluten-free spaghetti is the best, and I bet you couldn’t tell which is which.  So giving up gluten would be a plus, and your body would surly appreciate it.

Gluten – is a substance present in cereal grains, especially wheat, that is responsible for the elastic texture of dough.  There’s so much more information out there.  Just google it and see.  Every bit helps when you are dealing with any kind of disease or illness.

It’s amazing when you stop and think about what’s happening, I never got sick, and always said my immune system couldn’t be affected.  I never took any kind of supplements or vitamins, but how things have changed.  Now, I take different types of vitamins and supplements.  Here a list:

  1. Vitamin A – energy
  2. Vitamin D3- calcitriol – energy
  3. Vitamin B – energy
  4. Vitamin B-12 – energy
  5. Coconut oil – ALS
  6. Fish oil – ALS
  7. Flaxseed oil – ALS
  8. Magnesium – ALS
  9. Melatonin – for sleep
  10. Omega 3 fish oil – ALS
  11. Stem-kine – for energy

I take these daily, who would never think, just to keep my energy up and able to do the simplest tasks.  I call them, counting your wins.

I am still able to walk with the use of a walker, I no longer drive.  Which was a huge lose.  So now I’m shuttled all over the place, I don’t get out much simply because the restroom thing is a big pain in the butt!  I can’t hold it like before, so staying home is fine by me.  Family visits and friends come by, and it’s just fine.  I find myself reading a great deal and writing things, blogging and posting on social media is so much fun.  I enjoy sharing my thoughts and positive outlook in life and in business.

I have a routine, every morning up by 7:00AM and watching the news.  In the shower by 8:15AM.  It takes me an hour to get ready, so I take my time. I get dressed, and in my office by 10:00AM or so.  I read and write, listening to meditation music, and spiritual music, also Christen music.  It helps me throughout the morning.  Downstairs by 1:00PM or so.  If the sun is out which in California the suns out 95 percent of the time.  Will sit outside on the front lawn, and take in some vitamin D, the good stuff, all neutral.  That’s why everyone tells me I’m getting darker everyday.  I love sitting outside, it’s the best.  I come inside and sit on the couch and listen to music for a while, or will watch CNN or catch a movie on Netflix’s.  I never get bored or feel alone.  I truly enjoy being home, and taking care of myself.  So when I’m not at the doctors office or getting needled you’ll find me sitting outside.  I give 100 percent of everything that has helped me to my wife, she has been the best thing the good Lord has blessed me with. My caregiver, wife and support team all in one.  If not for her I don’t know where I would be.  And to my immediate family, the love and support as well, and can’t forget about my two sons, Gus Jr, and Kenneth Christopher, their support and understanding is a blessing.  They are both stronger for me.

Walking in the footsteps of someone dealing with ALS, it’s just how it is.  Back in August about mid month, I was sent an e-mail for PatientsLikeMe.  An organization set up to bring patient together and share their stories and treatments.  Bridging the gap between patients and doctors, thinking outside of the box.  They were looking for candidates to join PatientsLikeMe for one year, to create a team of advisors who would share their journeys and help create a better process, for caregivers and partners.  They would select 14 individuals from a pool of about 1500 patients.  So I thought what a wonderful opportunity for me.  So I filled out the questionnaire and sent it.  About two week later I received other e-mail stating they would like to interview me.  So I reply and posted the dates given.  The interview went well, and again waited for their reply.  I was nervous in anticipation of the results.  About mid month September I received the e-mail I had been waiting for, it said congratulation Gus, you have been selected and they would be flying me out to Boston Massachusetts, where I would met the team of advisors.  It was a glorious day indeed.  I meet the entire staff and the person responsible for starting this amazing organization.  James Haywood founder, and his brother Ben. The company was started because James brother Stephen had ALS, and wanted to find a cure.  I am blessed and will give my all to those who are and will be diagnosed in helping them in anyway possible.  I share my thoughts and stories with all my PALS daily, PatientsLikeMe has created a site where everyday you can share how you are feeling and what new treatments maybe helping and posting it, the best form of releasing your words to help others.  Patient to patient relationship it’s the best.

The Lord works in mysterious ways, so always keep your eyes open because you’ll never know when you will be called.  So this brings me to today, December 23rd slow and easy.  Hoping for a better 2016 and they find a cure for those not yet diagnosed.  God bless everyone and a very Merry Christmas to all.  “Better in 2016”.

 

th

 

 

 

 

 

 

 

 

Gus: Rhino Style

Please share.

theperfectd™

GusGus is magical.

With a few words and his beaming smile, an entire room can light up and fill with laughter. His enthusiasm for life and love is infectious. He calls it “Rhino Style.” I didn’t know that rhinos were magical creatures.

I met Gus Prieto a few weeks ago at the PatientsLikeMe Team of Advisors kick-off meeting. Each individual on this team comes with experiences, conditions, and strengths that are different. It’s my hope that over the next few months, you’ll learn about them individually here.

People with diabetes want a cure. They want understanding.  They want support.

People with ALS want a cure. They want understanding. They want support.

People like Gus.

I’m sharing his story today.

What is ALS?

als_what_is_als_infographic-thumb-425pxYou might know it as Lou Gehrig’s disease. The Ice Bucket Challenge that was all the rage last year (and raised an important amount of money for…

View original post 1,549 more words

“Create The Happiness”

 

 

th

I’ve always said, it’s so easy to cultivate your feeling into sadness, and frustration when things don’t work out, the heart aches we cause ourselves and lets not discuss the anxiety, and feeling overwhelmed.  Take a step back, and replay the scenario in your head.  Where did I miss calculate or better yet, did I prepare myself for failure, by not completely understanding the task at hand.  Create the happiness, you seek not by setting yourself up for disaster.  There’s where the frustrations starts and getting upset at ourselves, but we already knew what to expect, don’t treat life-like playing the lotto.  Don’t assume the best and end up with the worst.  Those things will happen, if you don’t prepare why go through the motions.  

Create the happiness, for you and everyone else who cares about you and expects 100 percent effort in achieving your goal.  If you start something finish strong, don’t quit in the middle, because things will only get harder for you.  Once you’ve done it, than every-time you feel like the walls are closing in, you quit.  Creating bad habits are hard to break, don’t start something you know you will not complete.  We’ve all been there, signing up for the gym, or our health diet, don’t mis-understand my message.  It’s great to do those things and set targets for ourselves but, knowing ourselves is key.  Don’t set yourself up for failure, go to the gym, and start your diet, but limit yourself and make it fun.  Parter up with someone, and encourage each other, it’s called team work, together you win.  Creating the happiness you seek.  

I say these things because, life is already tough.  Things will happen, we don’t live forever, but that’s doesn’t mean we stop creating happiness for ourselves and others.  Life is fun, and met to be shared with others.  So start today, create the happiness, you seek and share it with others.  As for me, my blogs and posting help me it’s something I need, it bring peace of mind and assures me better days are yet to come.  My family and friends, help me and by their comfort and support reassured me things are just fine.  I’m not much for getting out, I feel good and everyday always thinking of ways to create my happiness and helping others find happiness as well.    

Something wonderful happen to me, as of October, 4th 2015, will be flying to Cambridge, Massachusetts, for a three-day meeting with PatientsLikeMe.  I’ve been selected as one of their team of advisors in help those affective with ALS and promote better ways of dealing and managing their lives.  I can’t even began to explain how happy I am for this opportunity, now I can truly begin to help those effective with ALS and other diseases.  So now you understand no matter what your situation there’s always a door waiting for you, the key is waiting.  So, I’m ready to start creating happiness for me and others, the good Lord works in mysterious ways.  #notalone #notfinished          

“Income versus loyalty”

thoughtsfromthefrontlawn

customer_loyalty_satisfaction_support_strategy_concept_cg8p8807682c_th

These two topics are completely different, and here’s why.  Loyalty, the quality of being loyal to someone or something.  In our daily business routine we sometimes focus so much on loyalty, and lose sight of the income or profits.  Our expenses and market strategies may not generate the bottom line profits we seek.  In business, its paramount that are outlined strategies and expenses a-line with our profit margins.  With that being said, I understand as a successful business, we must spend money to retain new loyal customers.  But, here the tricky part, our loyal customer will come in with or without an incentive.  Don’t misunderstand what I’m saying, but understand and measure those results, did my marketing piece drive in more customers’ or would the same amount having not marketed to them be the same.  Analysis must be performed with everything and tracked.  You can’t fix what you can’t measure…

View original post 295 more words

“Income versus loyalty”

customer_loyalty_satisfaction_support_strategy_concept_cg8p8807682c_th

These two topics are completely different, and here’s why.  Loyalty, the quality of being loyal to someone or something.  In our daily business routine we sometimes focus so much on loyalty, and lose sight of the income or profits.  Our expenses and market strategies may not generate the bottom line profits we seek.  In business, its paramount that are outlined strategies and expenses a-line with our profit margins.  With that being said, I understand as a successful business, we must spend money to retain new loyal customers.  But, here the tricky part, our loyal customer will come in with or without an incentive.  Don’t misunderstand what I’m saying, but understand and measure those results, did my marketing piece drive in more customers’ or would the same amount having not marketed to them be the same.  Analysis must be performed with everything and tracked.  You can’t fix what you can’t measure.  

Loyalty, what drives this part of the business?  It’s your front line employees they make or break the business.  The surveys may not identify the root issues and only being seen on the surface.  Our customer’s may come-in because of the market mailer they received, but your business may never see them again.  Those are the customer’s who say nothing and never response to surveys.  So, how do we stop this issue before it’s rooted.  There should be a process in place, that ensures every customer leaving has a follow-up scheduled in the system.  Having this process in place will ensure every customer is completely satisfied and will be returning for routine service and maintenance.  

     I’ve found after all my years in service, and working with our service consultants has given me the tools needed for success.  Loyalty, is what ensures are success and brings many referrals are way.  Understanding our data base is huge.  It’s not difficult, what’s difficult is not using the tools we are paying for, that’s the issue.  

I was told many years ago, numbers don’t lie, they only tell a story.  So, spend your money wisely, and track your marketing strategies.  I had put together a focus group and discussed ways of bring more customers in.  You would be absolutely amazed and surprised with all the ideas coming from your staff.  They understand it better than you realize.  Our costs and expenses will be cut in-half just by using their ideas.  So, put together a focus group, service consultant, parts person, and technician, and watch the magic happen.  Make sure you put an agenda in place not to get off target, and objectives must be outlined.  The team wins and most importantly your customers win.